The family of an eight-year-old boy who depends on cannabis oil treatment say they are terrified supplies will run out due to Brexit.
His mum wants UK supplies of the vital treatment and prescriptions to stop her boy’s life threatening epilepsy seizures.
Eight-year-old Murray Gray, from Edinburgh, must fund £1,300 in cannabis oil shipments from Holland every month to battle seizures.
Murray’s mum Karen is now fearful that they will not even be able to get supplies of paid-for drugs post-Brexit, the Daily Record reports.
She said: “Without the cannabis treatment his day will be full of seizures and the worst trauma but the medicine stabilises and allows him to have a far more normal life. The treatment has meant he hasn’t had a seizure since 2019.”
Murray gets three treatments a day of the cannabis oil.
Karen, 47, added: “It really makes no sense that the UK accepts the benefits of this treatment but we don’t cover it on prescription. We need UK supplies to help people like Murray and we really need to make the big step forward to ensure that families are not forced to make these huge payments for vital treatment themselves.”
SNP MP Ronnie Cowan has since slammed the UK’s “snail’s pace” in providing cannabis based medicine to families.
The drugs reformer claims a post-Brexit ticking time bomb means families face crisis as supplies of Dutch medical cannabis will no longer be made available to UK patients.
Most will instead have to pay for the treatment themselves.
Dutch suppliers have given a six month limit before the plug is pulled – which Scottish MP Ronnie Cowan claims is causing “unbearable pressure”.
Mr Cowan, SNP MP for Inverclyde, said supplies of Bedrocan will dry up in January 2022.
He said: “Imagine the mindset of a parent knowing that their child’s health is being bargained for on a six month basis. The pressure must be unbearable.
“Thirty months since medical cannabis was approved in the UK, 26 months since the Health Minister Matt Hancock promised it would be a matter of months before it was available, and now a six month ticking time bomb until children are deprived of what has proved to be life changing medicine.”
He added: “Things are moving but at a snail’s pace. After much pressure from parents of children suffering with rare forms of epilepsy, cannabis for medical purposes was approved in November 2018 but it is swathed in so much red tape that GPs will not prescribe it and to date, to the best of my knowledge, only a handful of prescriptions for provision on the NHS exist in the UK.”
A Scottish Government spokesperson said: “It would be inappropriate for ministers to intervene in decisions on the treatment, including clinical guidance, or funding for individual patients, for which we must trust clinicians and the NHS. It is also important to note that the regulation, licensing and supply of medicines remain reserved to the UK Government.
“On the continued access to Bedrocan products following the end of the EU Transition Period, the Scottish Government is relieved for the families affected that the interim solution has been extended and that they will not have their prescriptions disrupted, despite the wider disruption caused as a result of the UK Government’s Brexit policy.
“While policy on Brexit remains reserved to the UK Government, Scottish Government officials will continue to do all they can to work with the UK Government to try to find a workable, lawful and sustainable solution for the families affected.”